81. Information For The Public to online definitions, information pages, and support groups for genetic disordersand birth to sites that could be useful to the general public, including http://compgen.rutgers.edu/chr1/public/index.shtml

CHROMOSOME 1 INFORMATION FOR THE PUBLIC We sometimes receive requests from individuals with a family member who has a disorder specifically involving chromosome 1. These are usually partial chromosome 1 deletions or translocations. These individuals are often seeking support and information regarding potential prognosis, or may be looking for experts in chromosome abnormalities on chromosome 1. Because most of these disorders are very rare, we are not aware of any chromosome 1 deletion-specific experts or support groups. However, some of the groups and sources listed below may be helpful for further information. Support and Advocacy Groups The Alliance of Genetic Support Groups The Alliance of Genetic Support Groups is a non-profit organization dedicated to helping individuals and families who have genetic disorders. The Chromosome Deletion Outreach A list of support groups and contact information for affected individuals and families of affected individuals with Chromosome Deletions,Duplications,Ring Chromosomes,Inversions,Translocations. National Organization for Rare Disorders The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

82. ASHG 2002 Meeting: NOTES FROM THE PROGRAM CHAIR Clinical genetics, Malformations and Dysmorphology; Inborn Errors of Metabolismand Biochemical genetics; Therapy for genetic disorders; Molecular Basis of http://www.ashg.org/genetics/ashg/annmeet/2002/prog-chair.shtml

ANNUAL MEETING NOTES FROM THE PROGRAM CHAIR Program Addendum Abstract Program Assignments Press Information Online Registration ... For Further Information . . . On behalf of the ASHG Program Committee and the Board of Directors I welcome you to the Society’s 52nd annual meeting in Baltimore, Maryland. I attended my first ASHG meeting as a medical student in 1978, and attended the annual meetings for twenty years, never knowing how my abstracts were evaluated, or how the program was put together. It was only when I joined the Program Committee in 1999 that I began to understand the enormous complexity of designing the program, and the many efforts of many people who try to improve the scientific content each year. Planning for the Baltimore meeting began even prior to the 2001 meeting in San Diego. The location of the meeting was chosen approximately ten years earlier. About a year prior to the meeting, solicitation began for the invited sessions, with review and final selection in January. The Program Committee consists of 14 appointed members, who represent expertise in each of the 17 topics that are presented at the annual meeting. The 17 topics are as follows: Genetic Counseling and Genetic Education; Genetic Services and Tests, Genetic Screening, and Public Policy; Molecular Basis of Disorders with Complex Inheritance; Cancer Genetics; Genomics; Clinical Genetics, Malformations and Dysmorphology; Inborn Errors of Metabolism and Biochemical Genetics; Therapy for Genetic Disorders; Molecular Basis of Mendelian Disorders; Gene Structure and Function; Linkage Mapping and Polymorphisms; Cytogenetics; Cancer Cytogenetics; Genetic Epidemiology and Population Genetics; Prenatal and Perinatal Genetics; Development; and Statistical Genetics and Genetic Epidemiology.

83. Genetics Clinic At Child Development And Rehabilitation Center, is versed in general clinical genetics as dysmorphology, cytogenetics, biochemicaldisorders, or molecular with specialists in genetic ophthalmology, pediatric http://www.ohsu.edu/cdrc/genetics/

84. Educational Genetics CD-ROMs By BIODISC Two simulated breeding experiments for probability and inbreeding are included.37, KARYOTYPES genetic disorders, $ 69 educational CD-ROMs. http://www.biodisc.com/genetics.htm

General Biology Cell Biology Genetics Anatomy ... Home GENETICS CD-ROMs Our Genetic Educational CD-ROMs teach genetics basics and provide the student with many genetics experiments. Genetics Simulation Mendel's Principles of Heredity Genetic Engineering Introductory Genetics ... Genetics GENETICS SIMULATION (Windows only) With this excellent genetics introduction, a series of experiments in an electronic laboratory may be executed quickly and easily! Students will perform a variety of monohybrid and dihybrid crosses, gaining the true advantages of the scientific method. They may change tactics along the way and repeat the experiments until the desired results are achieved. GENETIC ENGINEERING Learn about the remarkable ability to manipulate DNA and transfer genes between different organisms. A graphic examination of procedures for transferring a human insulin gene to bacteria guides students into a thorough understanding of the techniques of gene manipulation and transfer. Topics include: (A) DNA Composition and its Function as Genetic Material, (B) The Use of Natural Variation in Genes for Selective Breeding, (C) Changes in Genes Through Mutation, (D) A step by step Guide Through the Experimental Process of Genetic Engineering, (E) Examples of Modern Genetic Engineering in Microbes, Plants and Animals, (F) The Applications of Genetic Engineering in Medicine and Gene Therapy.

85. General Health Contacts Information, Support And Other Resources For UK Patients org.uk Supporting families caring for disabled children and children with specifichealth conditions, including rare disorders. West Midlands general Contacts http://www.equip.nhs.uk/support.html

Home Information Topics Further information Search ... Other languages Topics: Addictions AIDS and HIV Allergy Arthritis ... Skin disorders Groups: Carers Children Disabled people Men ... Women EQUIP has a separate page on Social Care Information as well as some information on this page. Pages of information are available on specific topics listed on the left column but if these don't cover what you are interested in, this page should help. National information services Searching the web Support contacts West Midlands health contacts National Health Service Information Services: NHS Direct - 0845 4647 (local call rate) or textphone (for deaf or hard of hearing): 0845 606 4647 - a 24-hour nurse-led helpline for advice on illnesses and health services in your area. NHSIA - NHS Information Authority has online information about NHS Policies NHS Responseline - 08701 555455 for ordering Department of Health and NHS publications NHS.UK

86. Genetic Diseases Discussion Groups TOC Prevention of genetic disorders with Sims' genetic Letters Jarind B. Sriraumpuch8/3/01 Screening for Taysachs in the Jewish Community Interested Student http://www.mazornet.com/genetics/genetics1_toc.htm

www.Mazornet.com The Mazor Guide To: A Resource for Information and Support Organizations Genetic Counseling and Screening Genetic Screening Laboratories - A Directory A Brief Key to Basic Genetic s ... Jewish Genetic Diseases Boards General Discussion Board Home Contents Search Post CONTENTS Note: you may need to reload this page to see the most recent additions. Prevention of Genetic Disorders with Sims' Genetic Letters Jarind B. Sriraumpuch 8/3/01 Screening for Tay-sachs in the Jewish Community Interested Student, Australia 2/28/01 bloom's disease johann guschelbauer 2/21/01 Genetic Disease E-Mail Discussion List gendis-j-request@maelstrom.stjohns.edu 2/9/01 Gaucher Disease webmaster@gaucherdisease.org 2/9/01 familial dysautonomia S Peltzer 10/5/00 Help us make this site more helpful Jewish Celebrations 6/25/00 Re: Help us make this site more helpful donna e. Ish/Moran/Ekstrom/Meagher 11/27/00 Re: Help us make this site more helpful Jewish Genetic Diseases - A Resource The Jewish Celebrations Team at http://www.jewishcelebrations.com 5/22/00 Last changed: July 18, 2002

87. Topic Index , Electronic Media. •, Families. •, Florida Sites. •, general. •, GeneticDisorders. •, Gifted Education. •, Growth and Nutrition. •, Hearing Disability. http://www.dbpeds.org/links/

Search Links Highlights Training ... Feedback Topics Academic Resources Accident and Injury Prevention Advocacy Affiliates ... Wellness Advocacy Accident and Injury Prevention (53) Advocacy (2) Electronic Media (14) Violence (46) Behavioral Disorders Attention Disorders (4) Behavior (6) Hypnosis and Biofeedback (22) Sleep Disorders (42) ... Tourette Disorder and OCD (65) Child Development Early Childhood (13) Environmental Influences (15) Families (16) Normal Child Development (8) Developmental Disorders Autistic Spectrum (5) Developmental Disabilities (12) Hearing Disability (21) Neuromotor Disorders (27) ... Visual Impairment (47) General General (64) Handouts and Tools Handouts (20) Testing and Assessment (45) Medical Disciplines Genetic Disorders (18) Neurology (28) Neuropsychology (29) Nursing (59) ... Psychopharmacology (35) Organizations Affiliates (3) Organizations (30) Related Groups (37) Section on Developmental and Behavioral Pediatrics (41) ... Society for Developmental and Behavioral Pediatrics (43) Parents Parent Resources (31) Parenting (32) Personal Views (33) Prevention and Health Promotion Wellness (61) Reference Alternative and Complementary Medicine (49) Bibliographies (7) Email Lists (26) Informatics (23) ... Research Resources (38) Regional Florida Sites (57) Research Academic Resources (1) Outcomes (67) School Function Gifted Education (19) Learning Disorders (25) Reading Disorders (36) School Function (40) ... Special Education (51) Specific Conditions Child Abuse and Neglect (60) Chronic Illness (9) Dental Health (68) Diabetes (63) ... Substance Abuse (48) Training and Continuing Education

88. ClinicalTrials.gov - Linking Patients To Medical Research: Study Details Brain Imaging of Childhood Onset Psychiatric disorders, Endocrine disordersand Healthy Children. This study is currently recruiting patients. http://www.clinicaltrials.gov/ct/gui/show/NCT00001246?order=8

89. American Academy Of Pediatrics Policy Statements Relevant To Disabilities general Principles in the Care of Children and Adolescents with GeneticDisorders and Other Chronic Health Conditions. Guidelines http://curry.edschool.virginia.edu/sped/projects/ose/resources/aap_links.html

University of Virginia Curry School of Education Policy Statements from the American Academy of Pediatrics These are links to policy statements about topics related to disabilities and schools made by the American Academy of Pediatrics . The policy statements ose looking for information about disabilities in children and youths. Please contact AAP for further information. Policy statements about: Assisting Disabled Children Atlantoaxial Instability in Down Syndrome: Subject Review Behavioral and Cognitive Effects of Anticonvulsant Therapy Children With Health Impairments in Schools ... Return to Top This is http://curry.edschool.virginia.edu/sped/projects/ose/resources/aap_links.html. The page was served to 66.14.21.74 on Monday, 07-Apr-2003 22:23:48 EDT. It was last modified Sunday, 16-Jan-2000 12:32:51 EST by John Lloyd and has been accessed 1,294 times since 6 December 1997.

90. Publications - By Subject A B C D E F G H I J K L M N O P Q R S T GGeneral practitioners. + GGeneral public. + GGeneric drugs. + GGenes. + GGeneticdisorders. + GGenetic engineering. + GGenetic processes. + GGenetic services. http://tap.ukwebhost.eds.com/doh/point.nsf/WByKeyword?openview&Start=1024&Expand

91. Grief And Loss Resource Centre Deals with the many aspects of grief. From making funeral arrangements to online memorials.Category Health Mental Health Grief, Loss and Bereavement......kirshalom.gif unitedon.gif Sermon Lectionary A Holy Christmas Grief LossConnections GRIEF LOSS RESOURCE CENTRE Charlene Elizabeth Fairchild http://www.rockies.net/~spirit/grief/grief.html

A Holy Christmas Connections Charlene Elizabeth Fairchild I saw a new heaven and a new earth, for the first heaven and the first earth had passed away ... God will wipe every tear from their eyes. There will be no more death or mourning or crying or pain.... Revelation 21:1, 3 NIV This site, spread across a few pages, is divided into three sets of links. The first set includes grief and bereavement resources, called "Grief Links." The second set is devoted to various "losses" in our lives, other than death, that involve varying degrees of grief, called "Loss Links." The third set is comprised of links to Memorials collections. You will find these three categories useful. Go To GRIEF LINKS Go To LOSS LINKS Go to INDEX Go To Site Support Information ... View the Guestbook INDEX: Grief Links Funerals and Rituals Customs and Rituals Funeral Resources General Grief Resources ... Conferences INDEX: Loss links Other Issues Abortion Recovery Addictions: Alcohol Addictions: Drugs ... Victims of Violence INTRODUCTION This site is dedicated to all my fellow traveller's, both past and present, along the road of grief and bereavement. Grief is an equal-opportunity affliction. No one is immune from its caress. I've included "loss" as well because there are griefs associated with other things besides death. These losses and griefs include trauma and stress as well as the changes in our lives such as puberty, graduation, marriage, new job, lost job, new baby, moving, divorce and so on. It is my hope to provide a place where the issues of grief, grieving, transition, recovery and healing are addressed. Resources for ministers, police, EMS personnel, doctors, nurses, counsellors, and other professionals are provided.

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